Lead with Purpose: Become Their Treasurer and Help Achieve a Life Unlimited.
They believe in a world where everyone with cystic fibrosis (CF), can live a life unlimited, and they're inviting passionate individuals to join them on this powerful journey.
This is more than a governance role, and it s an opportunity to help guide strategic decisions that impact lives, influence national initiatives, and accelerate progress for a community that deserves nothing less than a brighter future.
Location: UK based role, Remote / hybrid
Commitment: Flexible, approx. one day per month
Remuneration: Voluntary (unpaid, with reasonable expenses reimbursed)
About themOur client is the UK s leading charity dedicated to uniting for a life unlimited for everyone with CF, which is one of the most common life-limiting genetic conditions.
Their team of dedicated staff, volunteers, and Trustees works alongside people affected by CF to fund life-changing research, promote world-class clinical care, and provide essential advice and support. They champion a community that is united by strength, compassion, and hope.
Their work relies on the generous donations of their supporters.
About the roleAs a Trustee, you will play a crucial role in the governance and strategic oversight of the charity, ensuring that they operate effectively, achieve their mission, and comply with all legal and regulatory requirements. Trustees are collectively responsible for safeguarding the charity s assets, ensuring they are used exclusively to further our objectives, and overseeing the charity s financial health, including budgets, financial controls, and reporting. Acting with integrity and in the charity s best interests is at the heart of the role.
The Treasurer oversees the financial affairs of the charity and ensures that they are conducted legally, transparently, and in line with the charity s governing document. Working closely with the Chair, CEO, Trustees, and any staff or volunteers, the Treasurer helps safeguard the charity s financial sustainability. This role is vital in supporting the delivery of their new Strategy and ensuring their positive impact on the lives of people with CF
Who are they looking for?They are looking for someone who will bring strong financial expertise and strategic insight to help ensure their organisation remains financially robust, well-governed and focused on delivering their mission. Your perspective will play a vital role in guiding their direction and ensuring they continue to put people with CF at the centre of everything they do.
They welcome applications from individuals of all backgrounds and experiences. The cystic fibrosis community is diverse, encompassing people of all ages and backgrounds. They are committed to ensuring that this diversity is reflected on their Board. They are especially interested in hearing from those with lived experience of CF, disabled individuals, and candidates from Black, Asian, and minority ethnic communities, as well as LGBTQI individuals.
Why Join Them? - Make a meaningful impact on the lives of people affected by cystic fibrosis.
- Engage with dynamic peers who are driven, forward-thinking, passionate and purpose-led.
- Help drive an inspirational mission that blends science, support, and community.
- Play a critical role in shaping their strategic direction, ensuring robust governance, and championing equity, diversity and inclusion.
- Gain valuable experience in governance and strategic planning.
- Use your expertise to fuel lasting change.
If you are passionate about making a difference for people with cystic fibrosis, please get in touch.
How to applyBefore applying, please ensure you read the job description for more information about the role.
Please prepare:A CV outlining your career history, including responsibilities and achievements.
A cover letter (max two A4 pages) explaining why you want to be a Trustee (Treasurer), what skills you can bring to the Board of Trustees and what you want to take away from this opportunity.
And then select Apply Now .
Application deadline: Monday 16 March 2026
Interviews will take place following the application deadline, and shortlisted candidates will be notified directly. They will offer as much notice as possible to support availability.
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