Patient Information Manager

Macular disease is the biggest cause of sight loss in the UK, with around 300 people diagnosed every day. The Macular Society is the only charity determined to beat the fear and isolation of macular disease with world class research, and the best advice and support.

To support people affected by macular disease now, the Macular Society provides a range of support, information and services. Our research programme is focused on finding new treatments and a cure to Beat Macular Disease forever.

If you can create content in a range of formats to make sure that people living with macular disease get the information they need, when they need it and if you have excellent research and communication skills and are confident managing multiple projects at once then we would love to hear from you.

As our Patient Information Manager:

• You will produce high quality, engaging and interesting patient information materials that are accurate and up to date.
• Seek and use input from people living with macular disease to inform our information offer and ensure it is meeting their needs.
• Lead evaluation of our patient information offer, gathering feedback and making changes to improve its quality.
• Create user journeys around content and services that allow and promote deeper engagement.
• Be an expert in what people with macular disease need to know and use that knowledge to guide others.

Our ideal candidate will have:

• Experience of creating quality-assured written patient information, translating complex scientific information into understandable language.
• Ability to search, understand and summarise scientific information and research papers.
• Extensive experience of tailoring content for different audiences and channels, including print, email and digital information.
• Excellent knowledge of best practice in digital health and patient information, including accessibility, SEO, and user journeys.
• Understanding of the information and support needs of people with macular disease, families and carers at all stages of their journey, or desire to develop this understanding.

In return, we provide a great working culture we do something worthwhile and are proud to work together to Beat Macular Disease as recognised by our inclusion in The Sunday Times Best Places to Work 2023 list.