As a Trustee, you will help steer the charity's strategic direction and ensure it continues to meet its charitable objectives and governance responsibilities in line with charity law. This is a meaningful opportunity to support a cause that directly impacts the quality and length of life for individuals with this complex condition.
This is a unique opportunity to lend your professional expertise to a small but impactful charity from the comfort of your home. You'll join a passionate, collaborative team, and help shape the future of Marfan support, education, and research in the UK. In return, you'll gain the satisfaction of knowing your time and skills are directly helping to improve lives - with limited time demands and maximum impact.
The Marfan Trust welcomes applications from a wide range of backgrounds that are reflective of the full diversity of its community. We would encourage candidates with current or previous experience in the charity sector. We would be particularly interested to hear from individuals with a background in Strategic Financial Management.
This role is voluntary and therefore unpaid. However, reasonable expenses will be reimbursed.
The role may take up to 3-4 hours per week to keep on top of the organisation's finances and accounts and to attend relevant meetings and liaise with staff and funders. There are quarterly Trustee Board meetings that take place in the evening and are held remotely. We are looking to move to meeting face-to-face at least once a year also. There will also be occasional fundraising events that we hope our Trustees will support and attend. Trustees are appointed for 3-year terms with an option to serve a second three-year term.
• Experienced Chartered Accountant with a willingness to share these skills voluntarily, ensuring the financial health of the Trust.
• Good experience and knowledge of charity finance, governance, and compliance.
• A genuine interest in rare diseases, particularly those affecting the heart or eyes.
• Ability to support the finance staff and provide clear guidance to the Trustees on financial matters.
• Sound judgment and the ability to seek and challenge information to enable decision-making.
• Ability to analyze information quickly for strategic discussions.
• Ability to build strong relationships with Marfan Trust supporters and funders.