LUPUS UK

ROLE PURPOSE This is an exciting new role which will build on an existing programme of supporting patient engagement in research, clinical trial development and clinical trials for lupus at a time of increased interest and activity in this area. KEY RESPONSIBILITIES Delivery Act as the first point of contact for researchers and pharma companies seeking to involve members of the public in their research or trials. Work to build a network of patients around the UK with an interest in being involved with PPIE. Work with the Health Information Manager to identify and facilitate any support needs of the PPIE network. Support and facilitate PPIE in all stages of lupus research. Support PPIE in Lupus UK s research grants process. Support engagement with diverse under-served communities. Ensure equality, diversity, and inclusion considerations in PPIE methods and communications Other Uphold the values and expectations of LUPUS UK. Carry out other duties relevant to your post as reasonably required. Occasional evening and weekend working and travel may be required to support our broader activities. QUALIFICATIONS AND EXPERIENCE Experience of working directly with patients and/or members of the public. Experience of supporting Patient and Public Involvement and Engagement (PPIE) activity. A relevant postgraduate qualification or equivalent experience (desirable). Experience of working in PPIE within a similar environment (desirable). Experience of working within research or the health sector (desirable). Experience of working with stakeholders, such as healthcare organisations, public groups,and professional networks (desirable). KNOWLEDGE AND SKILLS A strong understanding of best practice in PPIE within research. Knowledge of different types of research and the various stages of the research process. Excellent verbal and written communication skills, with the ability to tailor communicationfor diverse audiences. A demonstrable commitment to promoting diversity, equity, and inclusion in allengagement activities. Strong organisational and time management skills. Exceptional attention to detail. The ability to facilitate focus groups, workshops, and public forums (desirable). An understanding of NHS patient care pathways, clinical research processes, or clinicaltrials (desirable). VALUES AND BEHAVIOURS Able to uphold and champion the values of LUPUS UK, demonstrating high standards ofintegrity, accountability, respect for others, courtesy and professionalism. Passionate about the work of LUPUS UK and working in a non-profit environment with afocus on health and disability. Demonstrable empathy for service users and a commitment to understanding andaddressing the challenges they experience. Actively committed to the growth of equality of opportunity and diversity. An enthusiastic and flexible approach and willing to support colleagues. Commitment to continual professional development and willing to give and receiveconstructive feedback. A positive, can-do attitude and willingness to help with tasks outside normal duties. HOW TO APPLY The closing date for applications is: Monday 17th March 2025 (10am). Please reserve the following dates in your diary when you apply: Interview DatesTuesday 1st and Wednesday 2nd April 2025 There will be a single stage interview. Interviews will be held on one of two interview dates and can be heldremotely or in-person at our Romford office, as most convenient to the candidate